Category Archives: Fibromyalgia

FibrofighterNicole Weekend Update

The Agony of Fibromyalgia

Entertainment 

  • Movie – Julie & Julia
  • TV Shows – Cutthroat Kitchen, Family Guy, The Daily Show with Trevor Noah, Quantico.
  • Music: Disclosure, Sia, Enya, Jess Glynne, Gorgon City, Letherette, AlunaGeorge, Skrillex, Diplo, Jack U, The Jets, Robert Palmer.

The Agony of Fibromyalgia  

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The chronic illness battle has been on fire for me this weekend. A big thing to note is that I’m without my (herbal) medicine and that makes all of my illnesses worse including my depression. Add on my usual depression during the holidays. I can’t afford it anymore. The costs are higher and beyond my budget which means I’m going to really suffer during the holidays season and next month. I hate no having money to get things I need. I wish I could take care of it myself. I’ve even asked for help and got my response back or ignored.  I’ve been crying every single day as the fibromyalgia pain is too high up. I’ve thought of setting up a GoFundMe to possibly get funding to pay for my herbal medicine. The only thing has stopped me is that I don’t know enough people who would be willing to help me in that way. I also need help in getting more crafting supplies for my art therapy art supplies. I see so many others who gain funding so easily.  I feel really stuck with those type of things.  I’m happy that I created an Etsy shop to showcase my crafting mixed media artwork.  

 Most times I feel like I’m losing my fecking mind and that no one can help me get better. I’m on the east coast for the holiday season. I wasn’t planning on being out here during the holidays season but I couldn’t afford traveling back to see my parents. I’ve been experiencing high levels of depression and a spike in fibromyalgia pain. Everything in my body has flared up, and inflammation is heavy. One of the issues is joint pain that affects my ability to do anything. I can’t type well, can’t grasp things well, nor move properly. The weather here has been all over here from 30 degrees to 70 degrees. Add on chilly winds and such dramatic changes in the barometer and humidity. My body is unable to get used to any of the weather changes and it is never given a chance to get used to the weather or its surroundings. Im sure it will dip down in colder weather season again and I’ll be crying all over again which may happen tonight. I’ve exhausted all that would make me happy and I don’t have anything else. I’m still limited with my crafts as I don’t have all that I need to make even better completed crafting projects. 
 

There are things I’d love to get that would reduce my fibromyalgia pain and my depression disorders but it’s very expensive and there are legalities attached to it. While it has been decriminalized it’s not enough to guarantee safety. These are the times I wish I was living back in California again as I would have access to that wonderful green plant they have there in various strains. And it’s strong. That’s the only medicine that helps to relieve my pain completely. The strengths here are uneven compared to the legal states. There is no way to know what strain is being used nor what strength. I’ve learned I need to use a higher level strain to reduce my fibromyalgia pain and elevate my mood. My pain is too high. Entirely too high. I’ve learned what I need isn’t available.  

   

 

While I’m here with family, I see it is still difficult for them to understand what’s going on with me and I don’t understand them well. It’s hard to explain what’s going on with me too in laymen terms. I wish I had more interesting things to discuss but right now I do not. My health is numero uno.  All I know is that I’m feeling the full wrath of my chronic illnesses.
I don’t feel a connection with them like I should and I believe it’s vice versa for them. It feels like my needs are seen as lazy and immature. I’ll always be kid in my mind and heart. I’m awkward in how I speak and my words come out of me out of order. I end up offending them without realizing it and these days I’m afraid to speak. They want me to act a certain way, and that’s not me. It’s not a part of my personality. I like how silly, and humorous I am. A good sense of humor.  I hope one day I’ll be able to care for myself but I know I would need to have a caregiver to help me.  The list of things I can’t do is very overwhelming.  I try to not think about it too much as much as I can but I’m not always successful.  

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All About Costochrondritis

chestpain1Costochrondritis is one of the toughest symptoms of fibromyalgia that I’ve ever experienced.  It is truly the worst pain I’ve ever experienced as the pain is heavily radiated causing inflammation in my ribcage area.  Several years later I began to experience the severity of costochrondritis and I honestly believed I was having a heart attack.  Not only had the fibromyalgia pain spread all over my body but the intense pain from costochrondritis started from my chest, and then expanded to my stomach, my entire back and my legs.

Costochrondritis is a medical condition that causes chest wall pain around the ribcage and breast bone area which is within the chest wall.  Inflammation occurs when the cartilage swells up is connected to the ribs and breast bone area.  The level of pain depends on how much inflammation there is within the cartilage.  The pain levels can vary from mild to very painful. Basically the condition worsened the pain in my body making it hard to move and get things done.

 

I ended up in the emergency room several times as the attacks were so intense that I thought I was dying.  At my final visit to the ER over this issue, a physician told me that it sounded like costochrondritis caused by the fibromyalgia.  That’s when I learned the scary depths of fibromyalgia and all of the things it could lead to and how it could affect me.  Any type of additional pain affects my other illnesses too. I learned that I have to treat this pain separately and collectively with all of my chronic health problems. I make sure I get checked out regularly to ensure I haven’t developed another health problem.

costochondritisThe causes of costochrondritis are still unknown but there are various theories including:

  • Chest trauma such as a car accident
  • Physical strain that causes repetitive trauma
  • Upper respiratory infections and other viral infections
  • Other illnesses such as arthritis, ankylosing spondylitis, rheumatoid arthritis, and osteoarthritis.
  • Tumors that are cancerous and noncancerous can cause costochrondritis too.

Some of the treatments of costochrondris vary from home remedies to prescription medications.  Here is a list of several the most popular treatments recommended to treat costochrondritis such as:

  • Apply heat or ice to the inflamed area
  • Usage of over-the-counter anti-inflammatory medications such as ibuprofen or naproxen. It is recommended that it is best to take these medications with food.  However, for those with stomach problems, kidney disease, ulcers, or bleeding disorders shouldn’t take these medications.
  • There are local anesthetic and steroid injection options to treat costochrondritis. The injection is injected into the most tender spot affected by costochrondritis. This treatment option is available for patients who are affected by the chest wall pain and other prescription medications haven’t worked.
  • Antibiotics are used for patients with bacterial of fungal costochrondritis that has been causing infections to occur.

 

slide02-fibromyalgia-radiating-painAvoid any sort of strenuous activities such as exercise as it can make the symptoms until the symptoms have improved.  After this has happened then resume normal or regular activities.

In my future posts I will touch upon this topic as I consider a serious medical condition that is often misdiagnosed, misunderstood, and I feel that more people need to be informed about it.

 

 

 

 

 

References:

MayoClinic – http://www.mayoclinic.org/diseases-conditions/costochondritis/basics/definition/con-20024454/

 

Life Changes

good-newsI have been a little quiet as I haven’t posted in awhile because there have been many positive changes that have occurred in my life. My life did a complete 360 degrees all the way around but I must say it is an opportunity to focus completely on my health problems and finding the ways to build my life back up. I must say that the natural pain relief has been working for the most part for those who privately inquired.

Unfortunately the natural pain relief it is still very controversial but it is an herb that helps calm my pain and gives me much needed clarity.  I can’t believe the amounts of pain relief I have experienced.  I’m thankful for this short amount of time I have to handle this move without overdoing it until I accidently do too much which is something I have done already.  I admit I have been doing a little too much too so hence the “fibro-flare” or “pain flare ups”.  Despite the chronic pain and other illnesses I have fought through it all.

I’m making some big decisions that not only affect me but many others. In many ways I believe I have already made my choice but just like The Matrix film trilogy, I’m trying to understand the choices I have made too.   All I see is that I will have difficulty but I finally have the ability to find more treatment options for Fibromyalgia symptoms and other illnesses.

originalI can say that I feel different and free on many levels to try out and learn what best works for my body.   I feel as if I’m starting all over again in the new place, new surroundings, and more.  I’m happy for all of these options and new options I’ve never even considered.

Reflections on 2013

Nicole Leon - Blog Writer

Nicole Leon – Blog Writer

This year has had non-stop events of so much more than I could ever imagine.  I have experienced many disappointments and a few triumphs.  This year was very challenging with an added bonus diagnosis of a chronic disease that will also be with me for the rest of my life and an illness that can be fatal.

 

Losses

BFFs for life!

BFFs for life!

Over the course of the year, I have lost some friends and I know some people say that if they stop talking to you or don’t talk to you as much they aren’t your real friends. But here’s the thing there are people who are placed in your life for a short time and some for a long time.  I do feel that things have changed with a lot of people but that happens. I miss them but there isn’t anything I can do about it.  We all get busy with life and responsibilities.  There are people who I still wish I had a chance to meet before I move but I know that with my chronic health problems that has made it hard to do that.  It’s not my fault that I’m chronically ill and all I can do is move on. There will always be positive and encouraging people around to support me. I have reconnected with people I knew in high school and that connection has helped me with forgiving others and rebuilding those friendships.

 

 

Moving On

Jamaica view

Jamaica view

I understand that I will be moving forward to something large with this move. It’s huge! I have never moved this far, let alone out of the country. It was something that I had hoped that I wouldn’t have to do as I wanted to stay right here where I was born and raised.  However, certain events did not work out and my only other choice was to move.

I admit I will miss participating in my few hobbies such as couponing and receiving good free stuff.  So that means no more mail! I LOVE receiving mail.  I’m working on changing that by getting involved with crafts while I’m living in my new home and swap out postcards and handmade cards with others worldwide.  I know that I’ll be able to do crafts while I’m there as my fibromyalgia pain goes down a bit. I think it would help me to get through intense homesickness.  I’m trying to fight through the changes my chronic illnesses have forced upon me.  They have completely changed the way I react, and act with others.  I’m fighting through all of that.

 

 

Winnings

black-woman-excited11

  • The great things of this year included visiting family and having family visit us too.
  • I somehow managed to enjoy the little things in life such as finding ways to make myself laugh and keep a positive outlook of my life.
  • I have lost over 30 pounds in the last few months and while I have some ways to go I’m very happy to see the changes. I can thank going into an old exercise fitness workout called Richard Simmons’ Sweatin’ to the Oldies and walking.  I really want to get his new 3 DVD set as he has some exercises for people like me.
  • Seeing the NASA Space Shuttle Endeavour at the California Science Center.  I got very emotional seeing the shuttle as I have watched it take off into space and land many times in my life.  Space and exploration have always interested me.
  • Fight to keep a positive attitude and outlook.  I may not have always succeeded but I remain hopeful even when hope seems hopeless.  I know it’s not.  I keep going through persevering.

 

KittySickDayEven right now I’m battling with the flu that has refused to leave my body which is nonstop fun with chronic illnesses. Despite all of this, I’m sitting up and trying to continuously move forward each day of my life.

The Daily Fight Series

Gratitude

Gratitude

Today is one of those days where I have to fight even harder to get up and moving around. Each day is different and I never know how I’ll feel. Today my back hurts more than anything and the muscle spasms hurt on top of that. My arms, legs, feet, head, and yes even my eyelashes hurt! There is no way to escape the various issues that fibromyalgia and the other illnesses I deal with too.

Even though I don’t feel well I got up out of my bed anyway. I still wonder if I should get a cane but 14+ years later I have refused to get one. I hold onto the furniture, and walls to get around my home. Sometimes I fall down and that hurts but you know what? I get right back up again.

I thought about my goals and what I would like to do today.

Goals for today included:

  1. Paid work
  2. Create my third post for the week
  3. Make a final decision on my topics for next week
  4. Comment on blogs of fellow bloggers
  5. Spend time reading blogs and the news
  6. Encourage others

So that looks like a lot but I’ve managed to complete over half of my goals.

I take my time while completing my goals. Now keep in mind I don’t always succeed but I keep going anyway and that is the most important part. I know that people may not be able to understand what I’m going through but all I can hope is they will reach deep inside to find compassion in their hearts.

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